Coping with Reflex Sympathetic Dystrophy Through Support Groups

Reflex sympathetic dystrophy (RSD), also known as complex regional pain syndrome (CRPS), can be difficult to cope with not only physically, but also mentally, for those suffering from RSD may feel that no one else is able to understand what they are going through. However, support and awareness groups exist to aid those suffering from RSD in this regard, and they are making great strides to raise awareness and research.

Reflex Sympathetic Dystrophy Syndrome Association

The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is an international organization that aims to promote awareness of complex regional pain syndrome, develop research on the condition, and to support those affected by CRPS. By conducting conferences around the country, the RSDSA helps to unite and galvanize both researchers and those suffering from CRPS.
Founded in 1984, the RSDSA serves nearly 10,000 members. In May 2014, the RSDSA held an International Scientific Conference to create an International Research Consortium (IRC). The IRC was created with the aim of improving CRPS research; at present, CRPS research faces an access issue wherein few labs can access large numbers of clinical trial participants, both geographically and financially, thus leading to studies that are too small and too isolated. The RSDA has improved the situation already, however–according to the RSDA website, as of October 2014, over twenty laboratories have stated an interest in joining the IRC.
Power of Pain Foundation (POPF)

The Power of Pain Foundation provides “community based services that address needs of chronic pain patients with neuropathy conditions.” The POPF’s services are not limited just to those suffering from RSD, but also to those dealing with post-cancer pain, fibromyalgia, diabetic neuropathy, lupus, and more. Like other support groups, the POPF promotes awareness of chronic pain conditions and educates those suffering from them as well as their loved ones.
One of the POPF’s RSD-focused projects is the RSD/CRPS Quilt Project. The POPF accepts 12-by-12 inch patches to contribute to an awareness quilt that is dedicated to those who dedicate time and research to, or have suffered from RSD.
American RSDHope

American RSDHope is a non-profit organization that seeks to provide information about CRPS. Founded in 1995 by Keith Orsini, a full-body CRPS patient, and his family, the organization consists of “patients, family members, friends, and concerned others.” The organization provides basic information about CRPS, holds and provides means of holding awareness fundraisers, and recommends methods of finding treatment.
If you or a loved one suffers from RSD/CRPS as the result of someone else’s negligence, call us for help. We will talk to you and review your case for free. The Tyrone Law Firm specializes in representing those who have suffered a devastating injury, such as traumatic brain injury resulting from the negligence of another. Our personal injury firm here in Atlanta has a very successful record of trying such cases.
Nelson Tyrone handles Brain Injury, Spine Injury and RSD/CRPS cases throughout the United States. He involves only the top medical, rehabilitation and life-care plan experts in the field. His results on behalf of clients include several of the largest settlements and verdicts on record.
You can reach us at 404-377-0017 or via email at admin@tyronelaw.com. If we can’t help you, we will do our best to put you into the hands of lawyers who can.